Patient Perspective: EveryLife Foundation for Rare Diseases
One of our founding Patient Advisory Council Members, the EveryLife Foundation for Rare Diseases, is a 501(c)(3) nonprofit, nonpartisan...
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IGT Comments on CMS Proposed Rule on Value-based Purchasing Arrangements
Proposed rule advances longstanding priority for gene therapy stakeholders FOR IMMEDIATE RELEASE July 20, 2020 CONTACT: Macey Kostbar,...
IGT Webinar on CMS Proposed Rule on Value-based Purchasing
On Monday, July 13, the Institute for Gene Therapies (IGT) held a conversation with recognized experts on the CMS proposed rule that...
IGT to Host Webinar on CMS Proposed Rule on Value-based Purchasing
On Monday, July 13, 2020 at 4 PM Eastern Time, the Institute for Gene Therapies (IGT) will host a conversation with recognized experts...
IGT Statement on CMS Proposed Rule to Facilitate Value-based Purchasing Arrangements
FOR IMMEDIATE RELEASE CONTACT: Macey Kostbar msevcik@gene-therapies.org WASHINGTON, DC (June 18, 2020) – Below is a statement from the...
Patient Perspective: Susan Ruediger
Susan Ruediger is the founder and CEO of the CMT Research Foundation — a nonprofit organization with the single focus to expedite...
IGT Joins Axios to Host Webinar on Medical Research During a Crisis
Join Axios and IGT on May 4, 2020 at 12:30pm Eastern for a live, virtual event on essential medical research outside the scope of the...
FDA’s Dr. Peter Marks on Ways to Preserve Ongoing Medical Research During the Pandemic
By Jenn McNary, Patient Advocate, Founder of One Rare While most Americans are beginning to talk excitedly – albeit cautiously – about...
Patient Perspective: Seth Rotberg
Seth Rotberg of Boston, Massachusetts is a member of the IGT Patient Advocate Advisory Council, providing his expertise and experience to...
NEW INSTITUTE LAUNCHED TO ENSURE THE U.S. HEALTHCARE SYSTEM IS READY FOR GENE THERAPIES
FOR IMMEDIATE RELEASE CONTACT: Macey Kostbar msevcik@gene-therapies.org Industry leaders, patient advocates, researchers unite to...
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