Gene therapies present a unique opportunity to change the way we treat diseases. Given the complex nature of these transformative...

On April 28th, IGT Chairman Paulsen joined leaders in Congress on the Healthy Future Task Force Treatments Subcommittee Roundtable. The...

Last week, IGT joined many organizations in expressing concern about a policy proposal that would restrict patients’ access to certain...

By IGT Scientific, Academic & Medical Advisory Council Chair Donna M. Christensen April is National Minority Health Month, an important...

WASHINGTON, DC (April 5, 2022) – Today, the Institute for Gene Therapies (IGT) Chairman Congressman Erik Paulsen issued the following...

By Deborah Fowler, President & Founder of Soft Bones Rare Disease Day is a critical awareness day for many patients and families who are...

By IGT Patient Advocacy Advisory Council Member and Huntington's Disease Patient Advocate Seth Rotberg As we enter the third year of the...

WASHINGTON, DC (November18, 2021) – Today, the Institute for Gene Therapies (IGT) Chairman Congressman Erik Paulsen issued the following...

WASHINGTON, DC (August 6, 2021) – Today, the Institute for Gene Therapies (IGT) Chairman Congressman Erik Paulsen issued the following...

TX RARE works to improve access and health outcomes for nearly three million Texans living with rare diseases. Khrystal Davis, Founder of...