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Patient Advisory Council
PATIENT ADVOCACY ADVISORY COUNCIL
Patient advocates across a number of diseases contribute important perspectives that help ensure patients’ interests are at the center of our work.
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Khrystal Davis, Rare Disease Advocate, Mother of son w/SMA, Founder of Texas Rare Alliance
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Jenn McNary, Patient Advocate & Consultant, Founder, One Rare
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Seth Rotberg, TEDx Speaker and Huntington's Disease Patient Advocate
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Rolf Benirschke, Survivor and Patient Advocate Crohn’s Disease, Ulcerative Colitis, Colorectal & Bladder Cancer
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