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• Khrystal Davis, Rare Disease Advocate, Mother of son with SMA, Founder of Texas Rare Alliance

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• Jenn McNary, Patient Advocate & Consultant, Founder, One Rare

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• Lauren Holder, Huntington’s Disease Patient Advocate and Producer/Host of Help 4 HD Live Podcast
   

• ​Rolf Benirschke, Survivor and Patient Advocate Crohn’s Disease, Ulcerative Colitis, Colorectal & Bladder Cancer
   

• Jennifer Handt, Duchenne Parent-Advocate and Founder, Charlie's Cure 
   

• Frankie Bjorklund, Mother and Angelman Syndrome Patient Advocate
   

• Maria Kefalas, PHD, MLD Voices and The Calliope Joy Foundation, Gene Therapy Patient Advocate
   

• Kendra D. Riley, Founder of Dawning PR, Rare Disease Advocate and Mother of two children with MLD.