Advisory Councils

Corporate Advisory Council

The members of our Corporate Advisory Council provide collective input on IGT’s  priorities and engagement activities.

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Patient Advocacy Advisory Council

Patient advocates across a number of diseases contribute important perspectives that help ensure patients’ interests are at the center of our work.

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  • Khrystal Davis, Rare Disease Advocate, Mother of son w/SMA, Founder of Texas Rare Alliance

  • Jenn McNary, Patient Advocate & Consultant

       Founder, One Rare

  • Seth Rotberg, Patient Advocate & Patient in Huntington Disease Co-Founder, Head of Strategy & Engagement of Our Odyssey

  • Rolf Benirschke, Survivor and Patient Advocate Crohn’s Disease, Ulcerative Colitis, Colorectal & Bladder Cancer
     

Scientific, Academic & Medical Council

The transformative and technical nature of gene therapies requires that healthcare providers, researchers and scientists lend their expertise and experience to the conversation.

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The Institute for Gene Therapies advocates for a modernized regulatory and reimbursement framework that encourages the development of transformative gene therapies and promotes patient access. 

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