Gene Therapy Resources

Gene therapies represent an exciting new way to treat disease. Naturally, stakeholders have a lot of questions about these transformative therapies – from how they work and how they’re made to what diseases they’ll treat and whether they’ll be covered by insurance. 

Here we have gathered some of the most informative resources on gene therapies from our advisory council members and beyond. We hope this one-stop-shop is a helpful guide to learning about gene therapies.

What are Gene Therapies? 

Background on the science behind gene therapies and how they’re made.

The American Society of Gene and Cell Therapy

The American Society of Gene and Cell Therapy

The American Society of Gene and Cell Therapy

Global Genes

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U.S. Food & Drug Administration

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Sarepta Therapeutics

The Value of Gene Therapies

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EveryLife Foundation Position Paper developed by Health Advances in collaboration with the Partnership to Improve Patient Care

Solutions to Access Barriers

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Institute for Gene Therapies

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Institute for Gene Therapies

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EveryLife Foundation for Rare Diseases

IGT Comments on Policy Proposals

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The Institute for Gene Therapies advocates for a modernized regulatory and reimbursement framework that encourages the development of transformative gene therapies and promotes patient access. 

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