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Congressional Briefing: Realizing the Promise of Gene Therapy: Ensuring Access

On December 13, the Institute for Gene Therapies held its third Congressional Briefing of 2023, "Realizing the Promise of Gene Therapy: Modernizing Policies to Benefit Patients," co-hosted with the Alliance for Regenerative Medicine (ARM).

The briefing provided an overview of the unique value of gene therapies to patients and our healthcare system, and key policy priorities and challenges to address in the coming year. Speakers included:

  • Lauren Holder, Huntington’s Disease Patient Advocate and Producer/Host of Help 4 HD Live Podcast

  • Erik Paulsen, IGT Chairman (moderator) 

  • John Feore, IGT Policy Director

  • Erica Cischke, ARM Vice President of Government Affairs 

  • Brian Fahey, Legislative Director, Office of Rep. Brett Guthrie (R-KY)


Watch the discussion here:


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