Blog | IGT

NEW IGT Policy Resources Available

Gene therapies offer a completely new way of treating a range of serious diseases. But before we can realize their full potential, a...

IGT Recognizes Rare Disease Day

This Sunday, February 28th marks the 14th Rare Disease Day. Patients, advocates, providers, and others around the world recognize this...

Institute for Gene Therapies Comments on CMS Final Rule on Value-based Purchasing Arrangements

WASHINGTON, DC (December 23, 2020) – Today, the Institute for Gene Therapies (IGT) Chairman Congressman Erik Paulsen issued the following...

Patient Perspective: Erin Frey with CureDuchenne

CureDuchenne’s mission is to improve the lives of everyone affected by Duchenne through accelerating research to find the cure, improving...

Patient Perspective: Cure SMA

September is Newborn Screening Awareness Month, a dedicated time to educate the public about this critical screening. IGT advocates for...

Dr. Peter Marks Clarifies FDA’s Approach to Gene Therapies After CRL for Hemophilia A Treatment

By Jennifer McNary, mother of two sons with Duchenne muscular dystrophy, patient advocate and founder of One Rare. For all the incredible...

Patient Perspective: EveryLife Foundation for Rare Diseases

One of our founding Patient Advisory Council Members, the EveryLife Foundation for Rare Diseases, is a 501(c)(3) nonprofit, nonpartisan...

Institute for Gene Therapies Comments on CMS Proposed Rule on Value-based Purchasing Arrangements

Proposed rule advances longstanding priority for gene therapy stakeholders FOR IMMEDIATE RELEASE July 20, 2020 CONTACT: Macey Kostbar,...

IGT Webinar on CMS Proposed Rule on Value-based Purchasing

On Monday, July 13, the Institute for Gene Therapies (IGT) held a conversation with recognized experts on the CMS proposed rule that...

IGT to Host Webinar on CMS Proposed Rule on Value-based Purchasing

On Monday, July 13, 2020 at 4 PM Eastern Time, the Institute for Gene Therapies (IGT) will host a conversation with recognized experts...

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