Blog | IGT

Institute for Gene Therapies Comments on CMS Final Rule on Value-based Purchasing Arrangements

WASHINGTON, DC (December 23, 2020) – Today, the Institute for Gene Therapies (IGT) Chairman Congressman Erik Paulsen issued the following...

Patient Perspective: Erin Frey with CureDuchenne

CureDuchenne’s mission is to improve the lives of everyone affected by Duchenne through accelerating research to find the cure, improving...

Patient Perspective: Cure SMA

September is Newborn Screening Awareness Month, a dedicated time to educate the public about this critical screening. IGT advocates for t...

Dr. Peter Marks Clarifies FDA’s Approach to Gene Therapies After CRL for Hemophilia A Treatment

By Jennifer McNary, mother of two sons with Duchenne muscular dystrophy, patient advocate and founder of One Rare. For all the incredible...

Patient Perspective: EveryLife Foundation for Rare Diseases

One of our founding Patient Advisory Council Members, the EveryLife Foundation for Rare Diseases, is a 501(c)(3) nonprofit, nonpartisan o...

Institute for Gene Therapies Comments on CMS Proposed Rule on Value-based Purchasing Arrangements

Proposed rule advances longstanding priority for gene therapy stakeholders FOR IMMEDIATE RELEASE July 20, 2020 CONTACT: Macey Kostbar, ms...

IGT Webinar on CMS Proposed Rule on Value-based Purchasing

On Monday, July 13, the Institute for Gene Therapies (IGT) held a conversation with recognized experts on the CMS proposed rule that make...

IGT to Host Webinar on CMS Proposed Rule on Value-based Purchasing

On Monday, July 13, 2020 at 4 PM Eastern Time, the Institute for Gene Therapies (IGT) will host a conversation with recognized experts wh...

IGT Statement on CMS Proposed Rule to Facilitate Value-based Purchasing Arrangements

FOR IMMEDIATE RELEASE CONTACT: Macey Kostbar msevcik@gene-therapies.org WASHINGTON, DC (June 18, 2020) – Below is a statement from the I...

Patient Perspective: Susan Ruediger

Susan Ruediger is the founder and CEO of the CMT Research Foundation — a nonprofit organization with the single focus to expedite treatme...

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