News & Updates

WASHINGTON, DC (November18, 2021) – Today, the Institute for Gene Therapies (IGT) Chairman Congressman Erik Paulsen issued the following...

WASHINGTON, DC (August 6, 2021) – Today, the Institute for Gene Therapies (IGT) Chairman Congressman Erik Paulsen issued the following...

TX RARE works to improve access and health outcomes for nearly three million Texans living with rare diseases. Khrystal Davis, Founder of...

IGT is proud to have the National Human Genome Center of Howard University as a member of our Scientific, Academic & Medical Council....

WASHINGTON, DC (April 27, 2021) – Today, the Institute for Gene Therapies (IGT) Chairman Congressman Erik Paulsen issued the following...

By IGT Scientific, Academic and Medical Council Chair Donna M. Christensen April is National Minority Health Month, a time to recognize...

Gene therapies offer a completely new way of treating a range of serious diseases. But before we can realize their full potential, a...

This Sunday, February 28th marks the 14th Rare Disease Day. Patients, advocates, providers, and others around the world recognize this...

WASHINGTON, DC (December 23, 2020) – Today, the Institute for Gene Therapies (IGT) Chairman Congressman Erik Paulsen issued the following...

CureDuchenne’s mission is to improve the lives of everyone affected by Duchenne through accelerating research to find the cure, improving...

September is Newborn Screening Awareness Month, a dedicated time to educate the public about this critical screening. IGT advocates for...

By Jennifer McNary, mother of two sons with Duchenne muscular dystrophy, patient advocate and founder of One Rare. For all the incredible...

One of our founding Patient Advisory Council Members, the EveryLife Foundation for Rare Diseases, is a 501(c)(3) nonprofit, nonpartisan...

Proposed rule advances longstanding priority for gene therapy stakeholders FOR IMMEDIATE RELEASE July 20, 2020 CONTACT: Macey Kostbar,...

On Monday, July 13, the Institute for Gene Therapies (IGT) held a conversation with recognized experts on the CMS proposed rule that...

On Monday, July 13, 2020 at 4 PM Eastern Time, the Institute for Gene Therapies (IGT) will host a conversation with recognized experts...

FOR IMMEDIATE RELEASE CONTACT: Macey Kostbar msevcik@gene-therapies.org WASHINGTON, DC (June 18, 2020) – Below is a statement from the...

Susan Ruediger is the founder and CEO of the CMT Research Foundation — a nonprofit organization with the single focus to expedite...

Join Axios and IGT on May 4, 2020 at 12:30pm Eastern for a live, virtual event on essential medical research outside the scope of the...

By Jenn McNary, Patient Advocate, Founder of One Rare While most Americans are beginning to talk excitedly – albeit cautiously – about...

Seth Rotberg of Boston, Massachusetts is a member of the IGT Patient Advocate Advisory Council, providing his expertise and experience to...

FOR IMMEDIATE RELEASE CONTACT: Macey Kostbar msevcik@gene-therapies.org Industry leaders, patient advocates, researchers unite to...

By Diane Blumenthal December 18, 2019 I never thought I’d see the day when words like “process,” “scale,” and “automation” would make...

Guidances issued today provide regulatory clarity for product developers January 28, 2020 This is a pivotal time in the field of gene...

By Erik Paulsen August 27, 2019 Throughout human history, transformative technological changes have faced varying degrees of opposition....