Institute for Gene Therapies Comments on CMS Final Rule on Value-based Purchasing Arrangements WASHINGTON, DC (December 23, 2020) – Today, the Institute for Gene Therapies (IGT) Chairman Congressman Erik Paulsen issued the following...
Patient Perspective: Erin Frey with CureDuchenne CureDuchenne’s mission is to improve the lives of everyone affected by Duchenne through accelerating research to find the cure, improving...
Patient Perspective: Cure SMA September is Newborn Screening Awareness Month, a dedicated time to educate the public about this critical screening. IGT advocates for t...
Dr. Peter Marks Clarifies FDA’s Approach to Gene Therapies After CRL for Hemophilia A Treatment By Jennifer McNary, mother of two sons with Duchenne muscular dystrophy, patient advocate and founder of One Rare. For all the incredible...
Patient Perspective: EveryLife Foundation for Rare Diseases One of our founding Patient Advisory Council Members, the EveryLife Foundation for Rare Diseases, is a 501(c)(3) nonprofit, nonpartisan o...
Institute for Gene Therapies Comments on CMS Proposed Rule on Value-based Purchasing Arrangements Proposed rule advances longstanding priority for gene therapy stakeholders FOR IMMEDIATE RELEASE July 20, 2020 CONTACT: Macey Kostbar, ms...
IGT Webinar on CMS Proposed Rule on Value-based Purchasing On Monday, July 13, the Institute for Gene Therapies (IGT) held a conversation with recognized experts on the CMS proposed rule that make...
IGT to Host Webinar on CMS Proposed Rule on Value-based Purchasing On Monday, July 13, 2020 at 4 PM Eastern Time, the Institute for Gene Therapies (IGT) will host a conversation with recognized experts wh...
IGT Statement on CMS Proposed Rule to Facilitate Value-based Purchasing Arrangements FOR IMMEDIATE RELEASE CONTACT: Macey Kostbar msevcik@gene-therapies.org WASHINGTON, DC (June 18, 2020) – Below is a statement from the I...
Patient Perspective: Susan Ruediger Susan Ruediger is the founder and CEO of the CMT Research Foundation — a nonprofit organization with the single focus to expedite treatme...
