Advisory Councils

Corporate Advisory Council

The members of our Corporate Advisory Council provide collective input on IGT’s  priorities and engagement activities.

Patient Advocacy Advisory Council

Patient advocates across a number of diseases contribute important perspectives that help ensure patients’ interests are at the center of our work.

• Patient Advocate Foundation

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• Cure SMA

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• CMT Research Foundation

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• American Autoimmune Related Diseases Assoc (AARDA)

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• Khrystal Davis, Rare Disease Advocate, Mother of son w/SMA, Founder of Texas Rare Alliance

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• Jenn McNary, Patient Advocate & Consultant

       Founder, One Rare

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• Seth Rotberg, Patient Advocate & Patient in Huntington Disease Co-Founder, Head of Strategy & Engagement of Our Odyssey

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• Rolf Benirschke, Survivor and Patient Advocate Crohn’s Disease, Ulcerative Colitis, Colorectal & Bladder Cancer
   

• Ronald Bartek, President/Director/Co-Founder of Driedreich’s Ataxia Research Alliance
   

• Todd Durham, PhD. VP of Clinical Outcomes Research, Fighting Blindness Foundation
   

• Brian Masnfield, PhD. EVP of Research/Interim Chief Scientific Officer,
  Fighting Blindness Foundation